Speaker: Bronwyn Rideout
Facilitator: Zalfa Dinah Khairunnisa
Background: During pregnancy and early parenting, autistic adults contend with increased sensory demands and services ill-suited for their needs. How Aotearo’as unique maternity system fares with this cohort is unknown due to the dearth of local data.
Methods: 15 autistic people who gave birth in New Zealand between 2012-2022 were recruited through social media. Participants predominantly identified as female but represented varied backgrounds and childbearing experiences. Using Kathy Charmaz’s constructivist grounded theory, verbal and written semi-structured interviews were conducted by the lead author, an autistic midwife-researcher, utilising inclusive practices.
Results: Autistic birthing experience in Aotearoa shares many of the same hallmarks found in international research, including heightened sensory sensitivities and late diagnosis. Participants reported varied benefits from continuity of care models but also demonstrated significant self-determination in navigating childbearing by prioritising their physical health, mental well-being, or the needs of others during decision-making and support-seeking.
Conclusions: This study has highlighted various challenges autistic parents negotiate during childbearing and the transition to parenthood. Midwifery-led, continuity-of-care models can ameliorate some challenges, but decision-making was chiefly informed by the participant’s awareness of their individual physical, mental, and domestic needs. The findings will assist in the provision of enabling and empowering care to autistic clients and can improve the morbidity and mortality rates seen in the broader autistic population.
Speakers: Eunice Iluobe Akhigbe and Ridwan Abdusalam
Facilitator: Linda Wylie
Neonatal jaundice is a common but potentially serious condition caused by elevated bilirubin levels, which, if left untreated, can lead to kernicterus, an irreversible neurological disorder. While advances in neonatal care have improved management, myths and misconceptions continue to delay timely healthcare-seeking behavior, particularly in underserved communities.
This study explores the impact of cultural beliefs on neonatal jaundice management, emphasizing the critical role of midwives in community education, early diagnosis, and timely medical intervention. A review of clinical data, community health reports, and maternal health education programs highlights key misconceptions, including: The belief that jaundice is harmless and does not require medical attention. The misconception that sunlight exposure alone can cure jaundice, delaying hospital visits. Cultural remedies discouraging breastfeeding, leading to dehydration and worsening hyperbilirubinemia.
To combat these challenges, this study recommends:
- Community education campaigns to promote awareness of neonatal jaundice risks and medical care.
- Midwife training and engagement to strengthen their role in addressing myths and guiding caregivers.
- Integration of traditional and medical practices through collaboration with community leaders.
- Improved access to phototherapy and neonatal care, especially in rural areas.
- Mother-to-mother peer support networks, such as the Wellbeing Foundation Mamacare WhatsApp groups.
- Policy advocacy for neonatal jaundice screening programs at birth and early postnatal visits.
By addressing misconceptions through midwife-led education and advocacy, this approach enhances early intervention, reduces neonatal complications, and improves health outcomes for vulnerable populations.
Speaker: Carla Godoy
Facilitator: Susana Ku
Las parteras desempeñan un papel fundamental en la salud y el bienestar de nuestras comunidades, pero han enfrentan desafÃos como la falta de reconocimiento, apoyo institucional y oportunidades laborales. Es esencial fortalecer su rol, generar empleo y garantizar el respeto por su labor.
Más que un oficio, ser partera es una vocación que implica acompañar a las madres en momentos cruciales con profesionalismo y seguridad. Sin embargo, a pesar de su importancia histórica, muchas veces no reciben el reconocimiento que merecen. Para cambiar esta realidad, es clave impulsar oportunidades laborales en hospitales, clnicas y programas comunitarios de salud.
La solución pasa por la organización, la creación de redes de apoyo y la búsqueda de alianzas con el sector público y privado. Al unir fuerzas, es posible reducir el desempleo dentro de la comunidad de parteras y asegurar que su labor sea vista como indispensable para el bienestar social.
El camino hacia un mayor reconocimiento y estabilidad laboral requiere compromiso y trabajo conjunto. La unión de las parteras es su mayor fortaleza para lograr que su profesión sea valorada y esencial en la sociedad.
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Midwives play a fundamental role in the health and well-being of our communities, but they have faced challenges such as a lack of recognition, institutional support, and job opportunities. It is essential to strengthen their role, create jobs, and ensure respect for their work.
More than a profession, being a midwife is a vocation that involves accompanying mothers in crucial moments with professionalism and confidence. However, despite their historical importance, they often do not receive the recognition they deserve. To change this reality, it is key to promote job opportunities in hospitals, clinics, and community health programs.
The solution lies in organization, the creation of support networks, and the pursuit of partnerships with the public and private sectors. By joining forces, it is possible to reduce unemployment within the midwifery community and ensure that their work is seen as indispensable to social well-being.
The path to greater recognition and job stability requires commitment and collaborative work. The unity of midwives is their greatest strength in ensuring that their profession is valued and essential in society.
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